25 October 2023: We’re celebrating World Spina Bifida & Hydrocephalus Day
World Spina Bifida & Hydrocephalus Day is an important global observance day dedicated to raising awareness about spina bifida and hydrocephalus, which are birth defects that cannot be cured. Did you know that there are approximately one million cases worldwide every year? World Spina Bifida and Hydrocephalus Day (WSBHD) is held annually on 25 October to raise awareness and understanding of these conditions and to promote the rights of those living with them.
Understanding spina bifida and hydrocephalus
Spina bifida & hydrocephalus are two congenital disorders. Spina bifida, a birth defect affecting the spine, and hydrocephalus, a condition characterised by excess fluid in the brain, both have a profound impact on the lives of those affected.
When a child is born with spina bifida, surgery is required as soon as possible to close the hole in the child’s back. Despite the operation, there is still no cure for spina bifida, and the children must cope with their disability for the rest of their lives.
The most common consequence of spina bifida is a lack of control over the bladder, bowels and legs. This results in the need for continence management for those affected and their families. This is one reason why this topic is important for us and close to our hearts.
WSBHD 2023: Accessibility for all
World Spina Bifida & Hydrocephalus Day was initiated by the International Federation for Spina Bifida and Hydrocephalus in 2011 and has a different theme each year. This year´s theme is “Accessibility for all”.
Accessibility and inclusion are often a challenge for people living with spina bifida & hydrocephalus. Ensuring accessibility is of paramount importance to the spina bifida and hydrocephalus community. Accessible environments, adequate healthcare and social services enable individuals with spina bifida and hydrocephalus to participate fully in society. When accessibility is prioritised, barriers to inclusion are removed, leading to a more equitable and compassionate world
Empowering individuals with spina bifida & hydrocephalus
Teleflex Urology Care believes in the vision of the International Federation for Spina Bifida and Hydrocephalus, of creating a society that guarantees the human rights of children and adults with spina bifida and hydrocephalus, celebrates their contributions in all areas of life and guarantees equity at all levels.
During World Spina Bifida and Hydrocephalus Day, various activities are organised to take place during October, which is awareness month, such as picture, drawing and video contests or regional side events on all continents. On 25 October, the WSBHD23 main conference will take place. In an online webinar, everyone will learn more about “Accessibility for all” from people around the world. For more information, please visit:
https://www.worldspinabifidahydrocephalusday.com/activities-2023
Image source: International Federation for Spina Bifida and Hydrocephalus
